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gadgetgirl


Member

Posted Wed Jul 14th, 2010 5:45pm Post subject: anyone here had to care for parents?

Tito you made me laugh with the Margaret Thatcher comment! It still annoys me the way the Tories talk about her like some saint. I'm glad the ear is healing up. I'm sure there's a terrible joke somewhere in there about ear today, ear tomorrow.

Michael - I think my Dad doesn't talk much about it as he's still partly in denial about the whole thing. I gently suggested he talk to the Alzheimers association and he implied that would mean he had to admit it was happening. The funny (not hah hah) thing is in many ways he needs just as much help as my Mum, he definitely seems relieved when we come and visit. He still snaps if he thinks we are interfering or telling him how to deal with things, but just knowing he's not the only carer for a while really does seem to help. So maybe you helping your Mom, or just her knowing she's not on her own can help a little?

Caring is such a hard full time job - it sounds like you both could do with finding an extra hand.

*edit* rereading that I think I sound overly simplistic. Not trying to teach you to suck eggs honestly. Tired - insomnia strikes again.

That would be me.

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michael


Member

Posted Wed Jul 14th, 2010 10:00pm Post subject: anyone here had to care for parents?

hahaha! never for a minute did i think you were teaching me to suck eggs... lol.

nah it doesn't sound overly simplistic. it's just one of those difficult things that happens to have simple-sounding "solutions" (in quotes because it's not like anyone will be able to fix my grandparents or your mom, cause there's not a cure for these things) because that's really the best we can do, and ...i dunno... for me, i sometimes forget the simpler things still exist.

i definitley know what you mean about your dad needing as much help as your mom. tough tough times. but it's great that you visiting helps... maybe it also helps just to be able to talk about other things with company, yknow?

"HELLO I'M TACTILE !" is an anagram of my name

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Mystic River


Member

Posted Sat Jul 17th, 2010 8:28am Post subject: anyone here had to care for parents?

Hi everyone,

I have been holding off replying here because this is so close to home for me right now. Michael your first comment touched a nerve with me. I would like to talk about the problems I am faced with re my mother but I am terrified to, I am going to simply copy and paste out of my journal: if you don't want to read then just skip the next bit. I just need to get it off my chest. I have obviously changed names though.

Here goes:

I spoke to my mother on the phone. She was as unpleasant and incoherent as has become usual in these last couple of years. Apparently John wants a divorce. I am still not even sure if this is another one of her notorious wind-ups. I think she is rapidly losing her mind and I don’t know what to do about it. I can’t forgive her in person for all that she did because she doesn’t believe she has done anything and still repeats her own blameless versions of reality every time we speak. I felt absolutely awful and emotionally drained after the phone conversation. She is still addicted to sensation and drama and was trying to push for an indication from me that I am “on her side” about John’s unkindness. I accidentally let slip that I disapproved of him, but she grabbed that straw and took it to understand that I am willing to join her little army. I am not. I equally disapprove of her behaviour. They have both enjoyed years of tormenting and bullying friends and family members who have slighted them. They have enjoyed a mutual master-slave relationship whilst John flitted between genders (now he wants a sex change again) and he wants out now that he has found some independence. He had tried to break away before, but wasn’t strong enough – instead he took part in her unpleasantness and intimidation and played the role of her blunt instrument and housemaid. I was very, very hurt by these two people and resolved to have nothing more to do with either of them. However I am in a position now where I am ready to forgive my mother. I couldn’t give a toss about John. She is not ready to be forgiven: it would upset her and bring on another tantrum (her tantrums can last months on end). She asked if she could move over here and live with us. She has signed some legal paper (under duress, she claims) that will give her a largish sum of money. I am not tempted in the slightest and I found it distasteful that she tried to hook me this way. My mother was an abusive drunk with an addictive personality and is now probably the most unhinged, unpleasant and difficult, extremely overweight, bedridden and physically unwell person most people are ever likely to meet, and she wants me to take her in. I even think she asked because she knows I will say no – wanting only that I feel really guilty about it, which of course, I do. She has six carers looking after her. She is moved around her apartment via a hoist. I can’t believe she can possibly believe that I can cope. It makes me physically and mentally ill, even the thought of having her back in my life.

There you have it. I don't want her back but I guess I will keep an eye out that she gets the care she needs - she is already getting it actually. I do not believe this makes me a bad person, but I still feel bad.

Thank you so much for listening

There is always love.

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michael


Member

Posted Sat Jul 17th, 2010 11:35pm Post subject: anyone here had to care for parents?

Dandelion,

thanks so much for talking that stuff out loud on here, i hope it helps you feel less alone in this situation!

talk about it as much as you feel comfortable. it is nice to be able to talk about these things with folks outside of one's family, with folks who are more distant from it, isn't it?

did you tell her "no" out loud? i understand very much what you mean by "i do not believe this makes me a bad person, but i still feel bad." funny how that happens. (not funny "haha"... funny crummy.)

i think "keeping an eye out that she gets the care she needs" is plenty support from you. i'm sure it's really hard to feel that way 100% though. is that a recent journal entry? how are you feeling about things now?

"HELLO I'M TACTILE !" is an anagram of my name

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michael


Member

Posted Sat Jul 17th, 2010 11:41pm Post subject: anyone here had to care for parents?

the new developments with grandpa are:

grandpa had the tractor repairman take the tractor and fix it and sharpen the brush hog blades. tractor repairman dropped off that tractor and said "you don't ride that tractor do you? you hire someone right" grandpa said "no, i ride it." "you shouldn't be riding that tractor if you're over 80" grandpa, with guff and hands on hips: "well i'm 86 and i ride it just fine!!!"

uncle was watching all this, and took a part off of the tractor.

grandpa is very mad that uncle STOLE the tractor part, grandpa says if uncle does not return the tractor part by tomorrow, he will call the police and have uncle arrested.

mom called tractor repairman. tractor repairman had a father who had dementia, and lived in the country, and tractor repairman understands the situation. tractor repairman is willing to do several things, including bringing in the tractor to have the part replaced and lying about part availability and making it take weeks and months to actually replace it.

hm.

"HELLO I'M TACTILE !" is an anagram of my name

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michael


Member

Posted Sat Jul 17th, 2010 11:43pm Post subject: anyone here had to care for parents?

p.s mom told me she's definitely up for talking to the service in the city that directs her to some help, and she's also up for counseling (which is a big deal for her, she usually doesn't like that)

i'm having a beer

"HELLO I'M TACTILE !" is an anagram of my name

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Mystic River


Member

Posted Sun Jul 18th, 2010 8:44am Post subject: anyone here had to care for parents?

Hi Michael,

Thanks - I was always afraid that my family is just a little bit too weird for anyone to understand, but behind all tht unconventional stuff it is just the same as any other family. What to do to help loved ones as they grow old and crazy.

No I didn't tell her "no" and I think I will feel much better when I do. None of my siblings seem to have a problem with "no".

I don't really feel terribly uncomfortable about talking, just awkward. It is really good of you to "listen". My wish is that one day my mum and I will be able to just chat over a cup of tea without all the old pain coming up as it has awlays done. I love her even though she is crazy.

Glad your mom is willing to take steps. I wish you and her all the best.

Enjoy your beer. The weather over here has been glorious. I had a really, really good barbecue with my ex-colleagues on Thursday (just changed jobs) it was so lovely - I will remember it forever. We should all build memories to cherish.

There is always love.

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michael


Member

Posted Mon Jul 19th, 2010 2:47am Post subject: anyone here had to care for parents?

where is this glorious weather? it's topping 100F here and its humid. sweaty sweaty sweaty.

what is your new job like?

"HELLO I'M TACTILE !" is an anagram of my name

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Mystic River


Member

Posted Mon Jul 19th, 2010 7:26pm Post subject: anyone here had to care for parents?

It is a balmy 82 degrees here in Germany - too hot for me(approx 28 Celsius) we did have a few really hot days where it was 98-100 and it was awful. The day of the barbie was about 75 degrees and much more bearable. I am typically English - it's half way through the summer and I am still a bluish-white colour!

My new job is much like my old one - teaching - and I start at the end of August, when the new semester starts.
I am currently doing an intensive speaking course for graduates who need the credits to make up their qualifications. It'll be over on Friday - then it's holiday for me!
These students have to mostly talk and do role plays for 6-8 hours a day. I hope I'm not going to run out of material.

Where are you with that humid weather?

There is always love.

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gadgetgirl


Member

Posted Thu Jul 22nd, 2010 10:29am Post subject: anyone here had to care for parents?

Goodness DandelionSV - you have been through the wringer! What an awful lot of emotional blackmail you have to deal with

That would be me.

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Mystic River


Member

Posted Fri Jul 23rd, 2010 7:07pm Post subject: anyone here had to care for parents?

Gadgetgirl, thanks for your sympathetic post...

I thought about your post a bit. Was too tired to think about it at first. Then I was alarmed that an outsider can see better than I could all this time - I shouldn't be really, but I still feel pretty clueless about it all.
Of course it was emotional blackmail and yes I have been through the wringer. What else to say...
thanks ...but so many questions come up now
How much emotional blackmail is a lot?
And how can you know if it has harmed you...?
If one doesn't recognise manipulation then relationships can sometimes be like minefields. As a result, does that make me a difficult person to be around? I suppose I'll never know, but just keep doing the best I can.

So I get silly when people think I should behave
I clown around at inappropriate moments
I don't respond normally to inflated levels of sentimentality,
In fact, I usually laugh at 'em
But I am not cold
So might I be so bold
As to thank you!

...

How are you doing Michael?

There is always love.

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michael


Member

Posted Mon Jul 26th, 2010 10:28pm Post subject: anyone here had to care for parents?

i am good, i was away on a trip to minneapolis so am catching up with you all!

i am in oklahoma. it's 95-100 here quite a bit in the summer. where i am, it's usually dry, and 105 or so i'll still go out, but it's been rainy. the plants love it, but the people wilt.

the mosquitos love it too.

emotional blackmail... yeah, that's definitely the right words! if it helps to know... i know lots of people who come from families that do that a lot (emotional blackmail) ...and who are really completely different from their families! yes, they were definitely affected and hurt by it, but that didn't turn them into difficult people to be around. some of them have been in counseling, etc...others are just very self-aware individuals that made a big effort not to turn into their parents.

i don't know if that's what you were asking about tho, for sure

"HELLO I'M TACTILE !" is an anagram of my name

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Mystic River


Member

Posted Tue Jul 27th, 2010 7:58am Post subject: anyone here had to care for parents?

Hi, it's much cooler here, lots of rain. I don't know if I could cope with the kind of heat/humidity you've been having!

Re tough families:
I have done a lot of work on myself and did have some counselling some itme ago, also had some really good friends. I try to be aware and I do sometimes sound like my mother (arggh!) but I think that behaviour is within normal parameters. I look back over my life and think "wow, I really have done some growing up, and think that I was - although a nice person in my 20s - I was pretty clueless and not very streetwise!" I had a sleepless night last night and couldn't switch off - but it helped me realise. "OK it's enough now, you have had enough suffering. Now you live your life." I am not promising myself any miracles or journeys round the world, just my life as it shoud be I guess. I didn't expect to get philosophical! Ah well...

My plan is to disappear for a couple of days - just after I finish filling out my travel costs and student grades.

There is always love.

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Nitro


Member

Posted Tue Aug 10th, 2010 9:17pm Post subject: anyone here had to care for parents?

Tough stuff Michael. It's good you're trying to help your mom, but remember that her connection to your grandparents is different than yours. The emotional part of it. That's her mother and her father, not yours. She's not going to have the same sort of ability to 'detach' herself and see what you consider to be better options.

Some countries have no social services whatsoever. It's just understood that family takes care of family, no matter how much they want to murder each other.

I've been a caregiver before. It's very difficult at times, extremely stressful and sometimes infuriating. But I wouldn't have done any differently. No way did I want 'strangers' involved. And that stubborness has a price too

These days there are HHA's and CNA's and sometimes they work as, essentially, contractors and sometimes as part of agencies. These folks generally require insurance. In rural areas though, you can advertise for help and pay someone a certain amount to come spend *some* time during the week with them. The point for you seems more to make sure your mom gets a break from what can often feel overwhelming. And that's a very good idea.

Since your grans have a lot of pride, you could figure out ways to spare them any perceived 'insult' by introducing these people as friends or something. Those who work with the elderly often know how to 'get in' with them, get on their good side so to speak. I say let them do any little things they CAN do and continue to circumvent them on things they can't. You just can't let them know it's happening LOL Are there any other relatives that would be willing to spend a day with them so your mom can get a break?

Some states have good social services, others do not. The one I was in did not. Right now, so many states are in financial meltdown that there's just no money to go around for these things. People haven't quite got their minds wrapped around that yet, but they will...

Old people are going to do old people things. Mental sharpness goes downhill fast, cognition burps, a little paranoia surfaces, the body starts to fail. I'm sorry for being so direct but I've been in a similar situation and sugar coating things, IMHO, doesn't really help. I do hope that you all can find some assistance in *any* way possible.

I've a friend here who isn't technically trained, except in CPR, as a CNA or HHA but she does have a couple of old people she tends to during the week as her job. This is a rural area as well. Some people are looking to make some money here and there so if any of you have a spare $20 during any given week, you can maybe make contact with someone who could give a couple of hours to helping out at a day and time you need them most.

I feel for your mom and it sounds like she's just trying to do what she thinks is right and what she should do. And, as Tito and Dandelion have more gently put it, the price of getting in the ring is sometimes you get hit But, it takes a lot more strength to get in the ring than to sit and watch, doesn't it?

Really? Wow.

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michael


Member

Posted Fri Aug 13th, 2010 3:25pm Post subject: anyone here had to care for parents?

your totally right on all counts Nitro, and it's interesting to know the going rate for somebody who can look in on things! Mom is doing okay, she's looking for a housekeeper kind of person, but she may be able to find someone like you mentioined as well.

the g&p, they *do* do "old people things", but these are folks who, even as younger people, were paranoid, told stories about the CIA and aliens, etc... so in earlier years, it was kinda hard to tell...

me to mom: "mom, is granny getting alzheimers? she told me today that she saw a spaceship two nights ago."

mom to me: "no hun, she's always been like that."

course, that doesn't mean we don't love them, right?

it IS really scary thinking about how many states have cut back $ for eldercare kinds of stuff. so so so bad, and that's such a growing group! eek.

time to go look at silly pictures of cats

"HELLO I'M TACTILE !" is an anagram of my name

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