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katysara


Moderator

Posted Sat May 1st, 2010 4:41pm Post subject: Introduce yourself

Well I certainly empathise with the desire to be high and get things done. Last time I was high for less than a month I wrote almost 2 books, the one i finished is being published...

As for the cancer I have no personal experience so I can only sympathise. You may think this a dreadful thing to admit but in the past I have often wished i could get cancer and die in the place of someone who wants to live and doesn't struggle with bipolar disorder. Do you think like that at all? Right now I don't want to die and I don't want you to die needlessly. But I do understand quality vs quantity. Maybe that's something you could make very clear to your oncologist??? Be very direct. Take a friend for moral support if you need to.

Bigger hugs,
KSx

I am an administrator on this site.

"Having a great intellect is no path to being happy."
~ Stephen Fry

See my website: www.katysaraculling.com

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Vampyros


Member

Posted Mon May 3rd, 2010 10:57am Post subject: Introduce yourself

Yes - I do sometimes feel guilty (think I will start another post on Guilt). that I am wasting what life I have - particularly when there are those who would give anything for more time on this earth. I missed my last scan appointment, waiting for the next one - I have to have a couple of tests (endoscopy and gastroscopy) before I know what plans they have - then I will have to make a decision but I won't be bullied into treatment. During my highs i didn't sleep at all and could have the house cleaned, web site updates done - several new web sites created (whilst chatting with people on facebook) also catching up with my TV viewing or listening to music - all before my partner got up.

As my posts reflect I am a little above a do nothing phase - had been very low and could do nothing not even post online. But a little better now can get online and made some flapjacks yesterday - not feeling the urge to continue with the book at the moment - I have a structure and when I am lying in bed I know what to write but sat at a computer - get finger freeze.
Only two weeks into the Lithium, not as impressed with it as I was at first - thought it was going to be the miracle cure, definately got rid of the highs - but as mentioned earlier not always sure thats a good thing - but it has not been so successful with the lows although I have not "Done anything Stupid". I suppose when I see my Psychiatrist that they will put me on some antidepressants as well but the citalopram gave me a bad stomach and made me sick if already felt nausaus.
The difficulty I have at the moment is not knowing whether the tiredness and apathy is effects from cancer treatments/remaining tumour(s) or from the bipolar. Not that it matters - just makes it hard for medical staff to help.

I think my multiple personalities have multiple personalities - makes for quite a party.

"Books and friends should be few but good."

"It is better to be in chains with friends , than to be in a garden with strangers." -Persian Proverb
"Don't be dismayed at goodbyes. A farewell is before you can meet again. And meeting again after a moment or a lifetime is certain for those who are friends." - Richard Bach

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Vampyros


Member

Posted Mon May 3rd, 2010 12:28pm Post subject: Introduce yourself

Trying to persuade my partner to join - she said she was researching bipolar disorder online but did not check out this site - I will browse through some posts today and show her Katysara's site.

That was the major thing that that the programme did for me was to explain the disorder to none sufferers.

Vx

I think my multiple personalities have multiple personalities - makes for quite a party.

"Books and friends should be few but good."

"It is better to be in chains with friends , than to be in a garden with strangers." -Persian Proverb
"Don't be dismayed at goodbyes. A farewell is before you can meet again. And meeting again after a moment or a lifetime is certain for those who are friends." - Richard Bach

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katysara


Moderator

Posted Mon May 3rd, 2010 2:27pm Post subject: Introduce yourself

I hope my site is of some use - there are pages with facts about bipolar that should open your partner's eyes a little. Geez I wish my books were free so everyone could just read them.

Don't worry about having endoscopic procedures (either end). During my education I must have watched about 50 and there is nothing to worry about. OK it can be a little embarrassing but trust me, the doctor wont remember you face a day later. I guess they are looking for secondaries and I can understand your ambivalence about finding out if they exist. You mention a girlfriend (lucky you I am jealous), maybe you can do it for her because I am sure she wants you around.

Glad you are feeling a bit better. You have discovered what I call the bastard fact about bipolar medication. They are brilliant at treating mania and OK/crap at treating depression. If you are depressed keep fighting for antidepressant medication until you find one that works.

KSx

I am an administrator on this site.

"Having a great intellect is no path to being happy."
~ Stephen Fry

See my website: www.katysaraculling.com

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Vampyros


Member

Posted Mon May 3rd, 2010 3:02pm Post subject: Introduce yourself

Chears Katysara

My last two scans i was told showed only scar tissue from radiotherapy. At last visit they said I was too ill for this to be the case.

I am not worried about procedures - have no dignity left after god knows how many professionals and student docs have seen my nether regions - prob more than I have seen them myself

I have a high threshold for pain - but am very apathtic and lethargic when on the lows - as most are and therefore can somethimes simply not be bothered to go for the tests. I think even my girlfriend (I am sure you will find someone again when you are ready) would say that its more serious than the doctors are telling us and that even she does not think I will be here much more than a year or two - but we could be wrong

Vx

I think my multiple personalities have multiple personalities - makes for quite a party.

"Books and friends should be few but good."

"It is better to be in chains with friends , than to be in a garden with strangers." -Persian Proverb
"Don't be dismayed at goodbyes. A farewell is before you can meet again. And meeting again after a moment or a lifetime is certain for those who are friends." - Richard Bach

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katysara


Moderator

Posted Mon May 3rd, 2010 4:18pm Post subject: Introduce yourself

You could be wrong, you could be right - one thing is for sure, a positive mental attitude goes a long way so we need to get you out of this depression and into fighting mode asap!

As for the doctors, they have to tell you the truth so go ahead and ask the questions... I get the sense part of you doesn't want to know, and part of you is desperate to kick this cancer's butt. You are torn between knowing and fighting or sitting back and letting the cancer consume you.

KSx

I am an administrator on this site.

"Having a great intellect is no path to being happy."
~ Stephen Fry

See my website: www.katysaraculling.com

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Vampyros


Member

Posted Mon May 3rd, 2010 4:42pm Post subject: Introduce yourself

I think you are right - the depressed part of me thinks well just do nothing and I will die soon anyway. The fighter in me says I won't let bipolar or cancer win.

I don't get stressed by treatments or pain but I do get stressed by things getting out of my control. I could handle too much work when I was working for a company but the office is closing in September. I had obtained a job at the headoffice but my partner and I discussed it and feel that we have not been putting my health first and that a move away from the best cancer centre in the country and the support of family and friends is not a could idea. So I have decided to take redundancy but I worried about how the money will last, wanted to start my own business and know what needs done but just don;t have the energy or the strength in general to do it.

Finance is the thing that gets me down and worries me the most - I feel from your posts that this is an issue for you as well.

I tend to be the one that - ironically - looks after the household regarding finance and if I am having a bad time it gets neglected, phones not answered, letters unanswered so it builds up until I have a good day and feel well enough to sort it out.

Vx

I think my multiple personalities have multiple personalities - makes for quite a party.

"Books and friends should be few but good."

"It is better to be in chains with friends , than to be in a garden with strangers." -Persian Proverb
"Don't be dismayed at goodbyes. A farewell is before you can meet again. And meeting again after a moment or a lifetime is certain for those who are friends." - Richard Bach

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Vampyros


Member

Posted Mon May 3rd, 2010 4:44pm Post subject: Introduce yourself

I have an appointment with the shrink tomorrow, was not going to go as it was My mum and partner that organised it. But it may be a good chance to get the antidepressant side looked at.
Vx

I think my multiple personalities have multiple personalities - makes for quite a party.

"Books and friends should be few but good."

"It is better to be in chains with friends , than to be in a garden with strangers." -Persian Proverb
"Don't be dismayed at goodbyes. A farewell is before you can meet again. And meeting again after a moment or a lifetime is certain for those who are friends." - Richard Bach

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katysara


Moderator

Posted Mon May 3rd, 2010 5:01pm Post subject: Introduce yourself

Definitely go and get the antidepressant side looked at. I was like you SSRIs like citalopram make me manic so I am on a tricyclic (amitriptyline, which would also help you with pain due to cancer) although there are many tricyclics. She/he may try mirtazapine - I was on it for a long time as well as amitriptyline. Mirtazapine is GREAT if you have trouble sleeping, it pretty much knocks you out. There are 2 suggestions you could mention...

KSx

(Both are safe with lithium)

I am an administrator on this site.

"Having a great intellect is no path to being happy."
~ Stephen Fry

See my website: www.katysaraculling.com

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Vampyros


Member

Posted Mon May 3rd, 2010 6:03pm Post subject: Introduce yourself

Thanks for that - will mention them - although on oxy.. something for pain and thats pretty good. Morphine is in reserve but kept somewhere I can't get it as it would be too easy to take it all. The Mirtazapine sounds promising, if I get a good nights sleep regularly it might give me some energy.

They have to check to make sure it won't negatively affect my salts and white blood cells too as these are quite low due to cancer treatments.

Thanks again,

Vx

I think my multiple personalities have multiple personalities - makes for quite a party.

"Books and friends should be few but good."

"It is better to be in chains with friends , than to be in a garden with strangers." -Persian Proverb
"Don't be dismayed at goodbyes. A farewell is before you can meet again. And meeting again after a moment or a lifetime is certain for those who are friends." - Richard Bach

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katysara


Moderator

Posted Mon May 3rd, 2010 7:05pm Post subject: Introduce yourself

Yeah i am no expert in cancer but I am in antidepressants. I do know mirtazapine is used in cancer patients to reduce depression, anxiety and increase sleep. Lower doses have to be used if the cancer is in your kidneys or liver. Worth you asking about.

oxycontin? oxycodone?

KSx

I am an administrator on this site.

"Having a great intellect is no path to being happy."
~ Stephen Fry

See my website: www.katysaraculling.com

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Cappa180


Member

Posted Mon May 3rd, 2010 7:27pm Post subject: Introduce yourself

Hi,

I am Vamp's partner and have decided to join the forum because I have found it really useful in helping me cope with her Bipolar.

I am going to start a thread for carers (if I don't find one) as I think this would be really useful for others as well as myself - I realise I still have a lot to learn.

Many thanks to all who post on this site, particularly Katysara for her own site as well, you have really opened my eyes and I have gained a much better understanding of the disorder.

Cx


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katysara


Moderator

Posted Mon May 3rd, 2010 7:40pm Post subject: Introduce yourself

Welcome to the site Cappa, go ahead and start your thread!

KSx

I am an administrator on this site.

"Having a great intellect is no path to being happy."
~ Stephen Fry

See my website: www.katysaraculling.com

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Vampyros


Member

Posted Mon May 3rd, 2010 7:59pm Post subject: Introduce yourself

Welcome to the missus - She won't stop me posting what needs to be said. I have already learnt that it is best to get issues out in the open than keep them to yourself.

Katysara - re the antidepressants I will ask and mention your suggestions the Mirtazapine does sound ideal.

Vx

I think my multiple personalities have multiple personalities - makes for quite a party.

"Books and friends should be few but good."

"It is better to be in chains with friends , than to be in a garden with strangers." -Persian Proverb
"Don't be dismayed at goodbyes. A farewell is before you can meet again. And meeting again after a moment or a lifetime is certain for those who are friends." - Richard Bach

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MrRabbit


Member

Posted Mon May 3rd, 2010 9:26pm Post subject: Introduce yourself

Hello everyone!

I am 16 years old, almost 17 now, and I have not yet been diagnosed with Bipolar Disorder. I have had one, in my opinion, major depressive episode taking quite some time, during which the only reason for me to get out of bed was that otherwise my mom would drag me out of it. Was tired during the time pretty much 24/7, didn't want to do anything. Also had thoughts on dying, but more in a way like Stephen said 'I would not want to commit suicide, but I wouldn't mind to die.', or something in that manner. Well, basically that is what I think quite a lot.

Then there are also the periods in which I feel quite happy, satisfied, don't care about bad remarks or comments and things like that. However if something I really don't like (for any reason at all), I might just change into some sort of emotionless zombie for the rest of the day.

Like I said, I have not been diagnosed yet, nor have I been to a doctor of any forms. Currently I am on vacation, but when I get back I will certainly visit one, thanks to a friend of mine.

But the weird thing is (at least I think it is quite weird); I want to have bipolar disorder. I want to have it bad. Now I figured it might be because I want something to 'blame' for those depressive periods (yeah, I have had more then just that one major long lasting one), and it might also be because I feel like having it. I know, sorry for all of you who want to get rid of it, but that's me.

The thing that worries me, however, is that I think I might not be 'manic' enough. I am very scared of large groupes of people, scared of smoke (cigaretts and bus exhausts), scared of drinking alcohol, and scared of quite a bit more. I would never ever do something completely out of control, but I often feel like it. Is that still considered 'manic'? A lot of times, especially lately, I have wanted to throw random things at other random things and see what happens. Or I had wanted to lift the house, and throw it at another house, and see what happens. Or maybe what it would be like to all of a sudden start hugging someone (--wait, I actually did that one time -- just like that time I randomly licked my friend's agenda...hmm)

But most of the time I am too scared to do things. But I very much want to do them, just to see what happens, not because I will like it afterwards.

Sorry for the long story, hope (and guess, after reading almost all posts) you can cope with it.

In short, question is: Would you guys consider me bipolar, or absolutely not, or just depressive, or just crazy in the head? And is badly wanting to have the disorder wrong?

Thanks in advance,

MrRabbit

Oh and I sometimes hop around as a rabbit. Just because.


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